Hunter Syndrome (MPS 2) Support Groups

 

If you or a loved one has Hunter syndrome, there are many dedicated organizations, Hunter Syndrome Support groups and other resources that foster education, support and research for these diseases.

 

We encourage patients and caregivers living with Hunter syndrome to learn more about ongoing clinical trials for investigational therapies.”-  Barbara Wedehase, MSW, CGC, Executive Director of the National MPS Society

 

CLICK THE LOGOS ABOVE TO BE LINKED TO THEIR WEBSITES

  • TO QUALIFY,
    YOU MUST BE:

    • Ages 18 or older.
    • ​Diagnosed with Hunter Syndrome.
    • Available for 8 weeks of investigational treatment.
    • Willing to discontinue standard enzyme replacement therapy and switch to AGT-182 for the duration of their participation in the clinical trial.
  • Inquire about the
    clinical trial: